May 21, 2008 by Marj Hatzell
There are some things I take for granted.
Breathing is certainly one of them. I’ve never had problems breathing, apart from allergy-related issues. I’ve never had a problem sleeping (definately not before I had children and would take two-hour naps AND sleep up to ten hours a night!). So why is it that my children have such difficulty with this? It just doesn’t seem fair.
Of course, like isn’t fair. No one ever said life was fair, now did they? Nope. I don’t remember ever hearing it. I do, however remember hearing, “Life isn’t fair! No one ever said life is fair!” Egad.
So this evening? I get to take Bugaboo to duPont. Again. Only the third time this month so far, and the month is almost over! That’s a record! So far, we only have one appointment scheduled per month over the summer. I feel like I don’t have enough to do suddenly. This is a far cry from the six-to-eight times a month we were there last year and the three-to-four times a month so far this year. To be fair, this is with BOTH boys. But I still feel like it is a full-time job with no pay and benefits. Just the medical part.
Where was I?
Oh. Right. Bugaboo. Hospital. We’re scheduled for a sleep study. You know, like Bug Boy’s? Only this time I don’t get to sit back and relax and watch the nurse hook him up, chat with us, smile and laugh and then got to bed at nine. Nope. This time I get to restrain my child with a papoose (a thingy like a backboard with large velcro wraps that hold him down) and sit on him so he doesn’t get his feet out (he always does) and kick me or try to scratch my eyes out with his toes. He has done this. The worst part is that once they get him all hooked up the have to put these dreadful things called “no-no’s” on his wrists so that he cannot bend his arms at all. Not his elbows or his wrist. Won’t be able to move them. So he’ll use his teeth to chew them off (typical) and I will have to be hyper-vigilante all night to make sure he doesn’t wake up in the wee hours and attempt to unhook the sensors on his head, the apnea monitor, the CO2 monitor or the leg and chest monitors. Fine times, fine times.
Today I am taking it easy and avoiding life in general. I plan on getting take-out for dinner. I plan on doing nothing. I plan on taking a nap.
See you on the other side.