I’ma Gettin’ Real Here, People

I’m not one of those OMFSM MY LIFE IS SOOOOOO HORRIBLE!!! types of people. I’ll admit that things have been a little darker in my life lately than they have been in the past. The past few months, in fact, have been filled with challenge after challenge after challenge. I’m a bit weary but I’m hanging in there.

I do, however, want to come clean about something. Sometimes I feel like I’m not keeping it real, telling the whole truth. I don’t like painting myself as a martyr or a saint. I don’t want anyone feeling sorry for me and I don’t want folks to think that my children’s lives are some horrible, negative, dark thing. We have challenges. We struggle. We get frustrated. And it’s really difficult to parent these kids.

But I feel that way about parenting in general.

See, I’m no hero. I’m not a saint. I’m not doing anything special or amazing or super. I’m not Supermom. I’m not a martyr. I’m not an attention whore.

I’m just a mom.

Perhaps it’s because I don’t know any better? I don’t have a reference point. My kids have always had developmental delays. I knew there was something up when they were quite wee. I don’t have a typically developing child so this is all I know. Perhaps that makes my perspective skewed.

Look, y’all. I’m not fighting autism. I’m not fighting special needs. I’m fighting FOR my children. I’m fighting to make their lives better, to help them reach their potential. It’s an uphill battle sometimes (both ways, in the snow). It’s as challenging and frustrating as it is rewarding. It’s humbling. It’s chock full of life lessons. And BOY HOWDY does it make you appreciate the little things in life so much more.

I’m parenting here. To the best of my ability. Some days are harder than others FO SHO. But isn’t that what we’re all doing? Trying to get by? Surviving from one moment to the next? Pushing through adversity, rising to challenges, conquering one and moving on? Yes, parenting these children has changed me in ways I never dreamed.

And now the keeping it real part:

We currently have no floors in most of the house, just subfloors. Because the carpets had pee and poo and soap and bleach and food and rips and…the list goes on.

We have holes in just about every door and wall in our house.

Our screens are ripped and we can’t open our second floor windows because Bugaboo will either throw something out or climb out.

We have to keep padlocks on doors and gates to attempt to keep him from running away.

He routinely climbs on top of the garage, the cross bar of the swingset, the poles that hold the safety net onto the trampoline, six foot fences, on top of the minivan…

We bought a new fridge two years ago, had it for five minutes and it was already dented and scratched. Yes, the boys did it.

Anything we buy or replace is broken/scratched/ruined/messed up within days.

We don’t get much sleep.

We could stand to lose some weight. And they boys need to gain some.

We don’t get out much. We spend most of our time at home.

We sometimes skip vacations because it’s just easier to stay home and not deal with the “transition” thing.

I belong to a gym and rarely get to work out. But I do get to take the boys swimming there.

We spend a lot of time in waiting rooms.

I know more about genetics and diseases and syndromes and medications and medical conditions than I ever thought I would know.

Bugaboo’s new, laminate floor is already ruined. He did the ruining.

Our dishes get broken quite often.

We have handprints and food and dust everywhere.

I’m lucky to get the basic housework done, plus clean clothes AND feed my family each day. Anything additional is a bonus.

Meltdowns that include your kid biting himself and screaming like he is being murdered SUCK. Meltdowns that occur that way in public suck more.

But there’s something I want you to know. Those things up there? They are challenging. Often frustrating. Sometimes I comfort eat because of them.

But.

Is this life hard? YOU BETCHA.

Does it sometimes make me angry and sad? YOU BETCHA.

Is my life horrible and tragic? HELL TO THE NO.

But my perspective is that life makes you feel that way anyway. There ain’t no Hardship Olympics, folks. We’re all challenged, we’ve all got stuff to deal with. Some more than others. But it’s life.

And life is what you make of it (lemons, lemonade, etc, etc.)

Me? I’m making potatoes. I bet you knew that.

Posted in Blah, Blah, Blah | 21 Comments

Go Ask Alice When She’s Ten Feet Tall. Again.

You know, having an Upper Respiratory and resulting five week cough wasn’t enough. I needed more on my plate. I needed my whole family to get the flu the week after Christmas when they finally all went back to work or school. Bugaboo didn’t miss enough school from that or Christmas break so he needed to get a stomach virus last week and then he needed to share that virus with me. He also needed to have four day weekends three weeks in a row, and not a full week of school since Thanksgiving.

It’s opposite day. Again.

Look, Universe!  Go pick on someone your own size!  I buy organic, volunteer out the wazoo,donate to many worthy causes, am fairly humble and never say no to people in need. So I have to ask you, Universe: WHISKEY, TANGO, FOXTROT!

Wanna know what’s fun? Your kid puking and having the trots for twelve hours. And changing ten poopy pullups, pure liquid, running down his legs. And he’s nonverbal. And he can’t tell you what’s happening he just stands there with a look on his face. AND!  STRINGS! COMING OUT!  Better out than in, right?  But wait! There’s more!  He woke up in it (puke and poo). From head to toe. And no I’m not kidding.

And it gets better.

He was fine in twelve hours. Me? Three days. And then I got the genius idea to go on a  carousel with him and ride it twice the day I finally got back on my feet. Hello, vertigo! It’s been too long since we’ve met last!

But the icing on the cake? Bugaboo has been having some weeeeeird behavioral symptoms. As in, the sleep thing and the behavior thing is kinda adding up to something I am suspicious we are revisiting. Stuff I don’t want to ever have to see again.

Between the antibiotics, antivirals, vitamins, cough meds and saline I feel like we are running a pharmacy. And that doesn’t include the regular daily so-my-kids-don’t-hurt-themselves medications.

This is where I admit I’m glad we have awesome access to awesome health care and feel super-duper fortunate.

Posted in Blah, Blah, Blah, Autism and Stuff, Stuff that sucks | Tagged , , , , , , , | 4 Comments

It’s the End of the Internet as We Know it, and I Feel Fine

Wanna know what sucks?

SOPA. And PIPA.

Wanna know what they are? Try googling Googlingthem today. Or check on Wikipedia. I’ll wait while you do that.

Ok, now that you get it, follow these simple steps:
Go to Wikipedia.org
Type in you zip code
Write your local congressmen
Profit. Um. Well, in an intrinsically wealthy way. Like, on the inside and stuff. Ahem.

These acts will NOT protect people from piracy. What they do is give more govt control in an area where they need to keep their slimy little hands off. I don’t get all political and stuff often but this is one thing I feel strongly about. Not to mention, It could kill fun sites like LOLCATS. You don’t want to be responsible for killing cats and making baby kittens cry, do you? (The answer is no).

Protect the freedom of exchange of ideas, as the Internet was intended to be. Stop SOPA and PIPA now. Yes, you CAN make a difference. Just sayin’.

Posted in Blah, Blah, Blah, Girl's getting her geek on, Just for fun and stuff, Soapbox | 1 Comment